Kysa's Funeral Services

Kysa's funeral mass will be held on Wednesday, September 5, 2012 at 11:00 a.m. at Sacred Heart Catholic Church in Ida Grove.

I will post the full obituary sometime later today or tomorrow. 

Home with the Angels

Kysa Renee Forbes went home to be with Jesus today at 2:29 p.m.

She went very peacefully & without any struggle or any pain.  She looked so very peaceful after she had passed.

The Spells Have Returned

Kysa's spells have returned.  The first spell was yesterday (Thurs.) afternoon & they continued through the night & so far have been all day today (Fri.) 

The Drs. have told us that these spells that she is having are a bit different than the first set of spells, these they believe are related to her congestive heart failure.  She does still stop breathing during some of the spell, but seems to breathe more this time during the spells than she did a week ago.  Her spells tend to last anywhere from 10-17 minutes.  Her heart rate dips to 30ish beats per minute & her respirations range from none all the way up to 50+.  

Many of you have asked how Mark & I are.  I can tell you that we are hanging in there the best that we possibly can.  We make sure to eat two meals a day & try to get as much rest as we can (sometimes that isn't much).  We have ventured home a couple of times & spent the night with Owen & we have also went out to eat a couple of times up here in Sioux City to just get away from the hospital walls.

Thank you to everyone for all your love, support & most of all your prayers that you have extended to our family during this time.  We will be forever greatful to everyone for all that you have done!   

Enjoy the attached photo!  ;)

Apneic Free!!

It's been a few days since an update.

Kysa has been Apneic free since Friday evening at 10:30 p.m.  Praise the Lord! 

Right now she is resting very comfortably & for that we are very thankful.  Her vitals remain to be strong...heart rate is 150ish & her respirations are around 50-80 per minute. 

I will continue to update you in a couple of days.  Thanks for all the love & support from everyone. 

Kysa

This post is just about pictures!  She had a great day today! ;)

Apneic Spells

Kysa has been having quite a few apneic spells.  Apneic spells means that she quits breathing for a period of time.  Yesterday her spells lasted about 5-7 minutes, today they have gotten longer, 10, 12 & 14 minutes long.  The spells are happening much more frequently too, about every 1-2 hours.  When she gets the spells, her heart rate drops to around 35-50 beats per minute & she stops breathing for a period of time.  Occasionally she may take a breath, but pretty much doesn't breathe.  The Dr.'s have assured us that when these spells take place she isn't in any pain & that it is more of like a deep sleep.  Her color hasn't been the best.....the perfect pink baby skin has turned to more of a grey/blue color. 

Last night & today Mark & I have been giving Kysa the okay to go home & be with the Lord.  We want her to be at peace with no more struggles.  We know in our hearts that her Uncle Brian & all the other Angels up there are going to greet her with so much love.  And we know that she will be watching over us as our Angel in the many days & years to come.

Thanks again to everyone for all your love & support.  Without everyones love & support this journey would be so much harder to bear.  Much love to all!

Strong Lil Girl

Yesterday, Tuesday at 2:20, Mark & I removed the ventilator off of Kysa.  This was by far the toughest decision we have ever ever had to make & pray that we don't ever have to make this decision again.

We'd like to update everyone & let you all know that Kysa is one strong lil girl.  Her heart rate & respiration's have been steady since the ventilator was removed.  Currently her heart rate is 140 & her respiration's are at 40 breaths per minute.  

We know our time with her is limited with her given condition, so we are savoring every moment we get to hold her & be with her. 

Please continue to pray for us....we are going to need a lot of strength in the coming days ahead.  Lots of love to you all!